Welcome to Amy's 2011

I'm still here! I planned to write a post welcoming in the new year, but wanted to see if I got the job I applied for so I could post about that, but then I got the job and was busy, so never got this written. I'm working a few hours a week interpreting at a community college and loving it. It's the best of the education world: I don't have to prepare lectures and grade papers like the teachers, or do homework and take tests like the students, but I still get to hear the lectures and such. The college setting is perfect for me because I can just work one or two classes a day, with a few days off.

As much as I would have liked to start earning a little money right out of school, I'm kinda glad I ended up just interpreting at church and low key places like that for a while. I'm so much more confident in my skills now than I was even in internship last year. I've been blessed with great classes and clients and wonderful interpreter teammates who support me and do what they can to try to help make sure I'm not overdoing it physically. It's hard with my health issues, and I've had some bad days, but I'm enjoying being able to do a little work. Plus, I get paid days off if my clients play hooky, haha.

I also volunteer interpret at my church, Evergreen Bible Church, and work a few times a month at another church. I especially love interpreting the worship music. Signing the songs is like worshiping with my whole body, and many of the congregation (even those who can hear) have taken the time to let me know that I've been a blessing to them.

I haven't kept writing everyday like I'd planned, since the few hours of work take up most of my energy, but I have been able to do a little here and there. I brought the opening chapter of my NaNo novel, Reaching Sky, to the critique group in my area that Randy Ingermanson leads and the group was very pleased with it. Yay! The main problem is that the character voice sounds too feminine, so I'll need to work on that throughout the book.

A few weeks ago I started having worse spells of feeling dizzy, weak, and lightheaded. My doctor didn't have an opening at a time I was available, so they sent me to someone else. That turned out to be planned by God. The doctor listened to my symptoms and looked at my chart and said, "Wow, you have a fascinating array of issues. Who is taking care of you?" I'm like, "Well, not really anyone." He says, "You need to be seeing specialists, and ones who are not just going to check you for one thing and then say you're fine, but ones who like unusual cases and will actually figure out the problem." By now I'm about crying because doctors have been ignoring me for years and this one finally cares. He's retiring soon but is making sure others will be taking care of me.

Two years ago when I first started having tachycardia (abnormally fast heartbeat) the cardiologist I saw was extremely rude and condescending and basically told me I was too young to have any health problems so exercise more and get over it.

This new cardiologist I saw last week was great. He said if my heart keeps going this fast then eventually it'll wear out, so it's important to figure out what's wrong. He wants someone to do more thyroid checks on me but for now started me on a beta blocker and I'm suppose to eat tons of salt and drink water. If he can't find anything to keep my pulse lower and my blood pressure higher, then he'll refer me to an electrophysiologist to look into my heart rhythm and see whether I'll need surgery or not (I'm hoping for a not).

This week I see a rheumatologist. I'm so thankful to finally have competent doctors trying to take care of me, and I pray they'll be able to figure out what my body is doing this time, lol. Then next week I have two appointments to help determine if I'm disabled, so I'm nervous about those, especially since my health is directly affected by my level of activity. I'm not as sick right now because I'm resting a lot and only working a very few hours, so they won't be able to see how bad I get when I'm attempting to work or go to school full-time or even half-time.

So, that's what 2001 is shaping up to look like. Things are never boring around here, that's for sure.
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Moving Mountains

Wow, I didn’t realize it had been quite this long since I’ve written a post. Hope I still have some readers out there! Life is amazing. I graduated from the interpreting program this June, against all odds (only about 15% of students graduate). My friend in the picture, Holly, is one of my Christian classmates and dear friends who has been so supportive. The internship our last term was a great experience and I was blessed with good mentors. I did have some struggles because I ended up with a bit too busy of a schedule (seems pretty much everything is too much for my poor body) but stretched one term of internship hours over two terms and made it through most days. Now I am finishing up a few general education classes for my AAS degree.

Over the summer there isn’t much paid work available, but I’ve been volunteer interpreting regularly at a church. That’s been a blessing for me to be able to minister in that way and to keep getting interpreting practice and experience over the summer. I’m hoping to begin paid interpreting at a community college in a couple of weeks. I really like the supportive atmosphere at that college and I’ll be able to do just a few regular hours of work a week. I’ve also been accepted at a freelance agency and will be able to accept additional work through them during the times I’m feeling better.

My writing career is taking off as well. It can be challenging sometimes because writing takes so much mental creativity and the Fibromyalgia zaps so much of my energy, but as my school schedule is getting quieter I’m able to do a little more writing. My international collaborative fiction group published Delivered the beginning of this year. It’s a beautiful book and well worth getting, if I do say so myself. ;-) It’s available as a paperback or as an eBook on the Peculiar People website, or if you live in my area ask me to buy an autographed copy. PeP is hard at work on the next collaborative book, the Heirloom Chronicles project, and even have an agent who may be interested in seeing the finished manuscript.

I also had the privilege of being asked to speak at the international FaithWriters’ writing conference in Michigan last month. I taught a workshop on self publishing and it was a lot of fun. Despite my fatigue, I was able to speak clearly, and the whole conference had a lot of great info and even better, a lot of wonderful Christian fellowship and support.

My health issues continue to make life a challenge, but God continues to give me the strength to succeed in ways that sometimes seem impossible. One of my friends was just telling me how exciting all the things I’ve accomplished are, and even more exciting because it’s so blatantly clear that it’s not ME who is accomplishing them, but God through me, because there’s no way I could do any of it myself.

Thanks for all the encouragement and support you, my friends and family, have given me. I will do my best to actually keep this blog updated now that I’ve dusted it off again.


Overcome the odds
You don't have a chance
(That’s what faith can do)
When the world says you can’t
It’ll tell you that you can!

I’ve seen dreams that move the mountains,
Hope that doesn’t ever end
Even when the sky is falling.
And I’ve seen miracles just happen,
Silent prayers get answered,
Broken hearts become brand new.
That’s what faith can do!
That's what faith can do!
Even if you fall sometimes
You will have the strength to rise.

Kutless—“What Faith Can Do”

Finding the Pace of Life

Last week I was chatting with my young nieces about writing and drawing, when one of them commented, “Maybe when you grow up you’ll be a writer.” I had to laugh, but I also still get a little thrill sometimes when I realize, I am all grown up and I am a writer. Last month I got published for something like the fifty-fifth time, and last month I also started working professionally as a freelance editor. Of course, I’ve been doing small editing projects for friends and for PeP for years, but not full-sized manuscripts for strangers for pay!

This term I’m not taking any regular classes—just mock interpreting in one class and doing a Human Development correspondence course, as well as continuing with a little interpreting training with tutors. It’s a quiet schedule that seems just about right for my body, and lets me do occasional writing or editing in the evening.

I feel like my Fibromyalgia is finally as under control as it’s gonna get. My overall fatigue and especially pain levels are a little lower, and the cognitive problems aren’t as severe or as frequent. The only problem is that I’ve discovered in order to keep things that way, I have to limit my active activity time to about three hours a day, most days, with some rest days and lots of naps. So it limits things a lot, but I’d rather have a few hours I can do things well than have almost no good hours like happens when I push myself too hard.

On November 16th I have the next attempt at the Qualifying Exam for my interpreting program. I have to pass it in order to get an internship next term, graduate in the spring, and begin working part time as an interpreter. I feel fairly confident that I have the skills, I just have to pray my body will let me access them. It’s a performance exam, so not really something I can study for—just need to keep practicing.

Today I went to the DeafNation Expo. I took a couple of friends with me, one of whom doesn’t know much sign, so I got to do a bit of interpreting for him. Real life practice is always the best. We saw tons of people we knew at the Expo, so it was a lot of fun.
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Hold on Tight--life's a wild ride!

Life is certainly never boring around here. Let’s see, last blog post I was waiting to hear back from my echo on my heart, right? Thankfully it turned out normal. Most all my symptoms can be explained by Postural Tachycardia, which is annoying but not serious, and more related to the circulatory system then the heart itself.

As I’d hoped, my health started getting a little better this term, now that my school schedule is more sane. I finally got a sleep aid that helped, also (before that, if I was sleeping at all, I was waking up as often as every fifteen minutes). I finished up the study I was doing on the new Fibro med. I’m hoping to be able to stay off a pain med and just have the sleep med. I really don’t like to be on prescription meds at all if I can help it. So, I had about two weeks of things going pretty well.

Then the next thing hit.

I started having a lot of nausea and abdominal pain, different and longer-lasting than what I normally have with IBS (Irritable Bowel Syndrome--goes along with my Fibro). It didn’t feel like a virus or bug to me, so after several days I saw a doctor who decided it seemed to be a bad flare of IBS and gave me a med, with warnings to watch for appendicitis symptoms.

On Wednesday I was feeling sick and out of it with Fibro Fog, but went to school anyway. At least the cognitive problems provide good humor relief, if you let them! To give the rest of us practice interpreting in K-12 classrooms, a classmate was pretending to teach a 1st grade class, teaching shapes. Those who weren’t interpreting were pretending to be the 1st grade students. Some students pretended to answer questions wrong. As for me, haha, I didn’t have to pretend at all! The “teacher” passed out cardboard shapes and asked a question about road sign shapes. I held up a triangle and announced that yield signs were that shape--rectangles! Then when asked to find two squares, the “teacher” looked at what I was holding up and said, “Um, good try, Amy. You’re almost right!” LOL

I was finally feeling better last Thursday morning. I was excited because my Deaf interpreting tutor, James, had time free during my Mock Interpreting class for the first time all school year. (Mock is where a partner and I go to a real college class and interpret, but with only an imaginary Deaf client). I’m loving the class we’re interpreting in, though it’s a challenge, and I like having a real person to interpret for, so I was looking forward to having James be there. My Mock partner is a classmate, sister in Christ, and dear friend, Holly.

Thankfully I got through the class just fine and was headed to lunch with Holly before we met the tutor again to get feedback. We were almost to the cafeteria when pain hit. Bad. Like a knife ripping straight down from my belly button to my groin. For the next hour it hit me every few minutes. Sitting and laying down just made it worse.

I decided I better call my doctor. I knew they’d want to know if I had a fever, so I asked the college librarian if there was a nurse on campus. By that time I was shaking violently and pale and sweating from the pain. She quickly called security (1st aid response). He was cute. I told him I had Fibromyalgia and he looked blank for a minute and then brightened. “Oh, that’s a liver disease, right?” Um, yeah, not so much. I would have giggled if I hadn’t been so sick.

By then it was time to meet James. The stabs were coming a little less frequently, so stubborn me decided I would try to just push through the hour tutoring time so we could get feedback from James while it was still fresh in his mind. James watched me for a minute and then just got up and left. He’s like, “I’m leaving. Holly is driving you to the doctor.”

It’s so cool how I can see God’s hand in even things like this. Besides the timing of being able to finish the Mock class, it “just happened” that Holly was driving to a place a few blocks from my doctor’s office. She lives 45 minutes away in the opposite direction. That doctor looked at me and sent me straight to the ER (Mom came and picked me up).

I wish I could have the ER doctor for my primary care doctor. He actually talked to both mom and I (instead of ignoring one of us like many do) and explained the options and his opinion but let us have the final say without being pushy. They did blood and urine work and then did an ultrasound of my lower abdomen. Thankfully by then I wasn’t in too much pain. I can’t imagine having to go through an ultrasound if pressure caused pain. As it was, it was a little uncomfortable but mostly just interesting. I could see the pictures on a monitor over the gurney. Much of it wasn’t recognizable, but I was able to pick out my appendix and ovaries. The pictures are so curious…it isn’t a clear picture, but looks more like looking at something that has a thin piece of rubber stretched over it. The harder they push on the ultrasound wand, the tighter the rubber is pressed, making the outline of the organ a little more distinct. The pictures suddenly struck me funny and I got the giggles right in the middle of the ultrasound. Twice! I felt so bad because the poor tech lady couldn’t exactly do her job when the abdomen in question was shaking violently from giggles. Certainly that’s one of the few times in my life when I was saying to myself, “Think sad thoughts. Think sad thoughts.” LOL!

The ultrasounds looked normal. Five hours after arriving at the ER and eight hours after the bad pain first hit, I was sent home with only answers of what it wasn’t… The ER doctor said about 50% of the time they never do figure out what causes that kind of pain.

I’m still feeling a bit odd and achy in my lower right abdomen, but thankfully haven’t had any more severe pain. I have a follow up appointment next week. Unfortunately, I picked up a bad cold, probably compliments of the ER, and now have a bad cough. Just in time for mid-terms.
Ah well, such is life. I’m staying in pretty good spirits despite everything. School itself is going okay, other than the health stuff getting in the way. We have three extra interpreting tutors this term, two Deaf and two hearing interpreters, so we’re getting a variety of perspectives. It’s awesome and they are all so helpful and encouraging.

Last week Debbie Roome of Take Root and Write published an interview of me talking about life with an invisible disability. She writes the column “Daring to Love the Disabled.” The interview is here. I’m thankful for the opportunity to help spread awareness. I also have an article coming out soon in HopeNotes, a Christian magazine for people with chronic illnesses, and an interview being published in a book for teens who have Fibro. I’m thankful that God uses my trials to be able to reach out and help others.
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In the land of Uz

I’ve been waiting for this week for a while, but it didn’t bring the answers I’d hoped for. I had my cardiology appointment on Wednesday and got the results back from my second Qualifying Exam yesterday. I was really hoping to pass the QE, and I feel I have the skills to do so, but because of the cognitive problems caused by my Fibro, I often can’t access those skills. It didn't help that I'd just come down with the flu the night before the test. Well, I improved on the sign to voice section of my QE, and passed it, however I actually got a worse score than before on the voice to sign part. Since we have to pass on both parts to get an official Pass, I won’t be able to get an internship or graduate this year. The next opportunity to take the QE is in nine months (we get four total chances to take it).

I have to admit I’m frustrated and discouraged, but I know God has plans. I can see that it was a very good thing I didn’t pass the first QE (no possible chance I could have made it through this term with the addition of an internship--almost didn’t make it as it is), so I know I may look back on this one and see the reasons I didn’t pass. As it is, I’m hoping that I’ll actually be able to take care of myself sufficiently enough to be higher functioning a greater part of the time. This weekend I realized that for the past two terms I’ve been having to spend nine to twelve hours at school (including driving time) everyday. That’s a crazy schedule even for a healthy person. (Because of the specialized program I’m in, I’ve had no control over my schedule.)

Next term will be a little easier since I won’t have the internship. I have my schedule for that term planned out, hopefully with a good balance of rest and continued practice, but I’m not sure what my plan of action will be for over the summer and next year. I need a few more general ed classes for my AA degree, and I need to continue to focus on my interpreting skills, but I think the main key to my success will be to get healthier, and about the only way I can do that is to rest more so my Fibromyalgia symptoms are lessened. I’m praying for guidance as I figure out where God’s leading me for the next year.

Speaking of health, my cardiologist appointment was…interesting. The guy had a rather condescending attitude and I’m quite sure he thought I was 18 and didn’t bother looking at my chart to see that I’m much older than I look. My impression of him didn’t improve when his response to my sign language interpretation studies was, “Oh, then you must work at the blind school.” (believe it or not, that type of comment actually isn’t unusual… but hello, this was a doctor with how many years of schooling??)

Anyway, the cardiologist declared that all my symptoms were simply because I don’t get enough exercise. However, according to my research, it seems that lack of exercise can’t cause heart irregularities. Exercise might help some heart conditions, but lack of it doesn’t cause them. I will be getting a second opinion, but now that my schedule will be getting a little closer to sane, I’ll go ahead and try to add in swimming a few times a week. I’ve heard it often helps Fibro as well as some heart issues.

I suspect my heart issues are actually caused by Postural Orthostatic Tachycardia Syndrome (POTS), which actually isn’t a heart problem, but more of problem with the way the brain communicates with the circulation system. Basically the body has trouble regulating blood circulation, especially when standing, and therefore the brain doesn’t have enough blood. Apparently it’s fairly common for people with Fibro to also have POTS, and unfortunately some of the symptoms are the same. That means if I have it, I’m getting a double dose of debilitating fatigue, cognitive problems, and sleep disorders. Next week I go to my doctor for a prescription sleep med, so I’m hopeful that will help things a little.


*Title from Job 1:1